Patient-centered Outcome Research

Development and psychometric validation of the family-centered multidimensional outcome measure for pediatric palliative care targeted to children with severe neurological impairmentis—A multicenter prospective study

Background: Comprehensive outcome measurement in pediatric palliative care focusing on the entire unit of care, that is, the affected …

Sophie Pelke, PD Dr. Julia Wager, Dr. Benedikt Claus, Prof. Dr. Boris Zernikow, Mandira Reuther