Publikationen

Dr. Larissa Kubek, PD Dr. Julia Wager, Patrick Brzoska, Lorna Fraser, Prof. Dr. Boris Zernikow (2025). Introducing the Descriptive Framework for Assessing Epidemiological Cross-National Transferability: Application to Extrapolating Pediatric Life-Limiting Condition Prevalence Between Two European Countries. J Palliat Med.

Amelie Florentine Schmidt, Lisa-Marie Rau, PD Dr. Julia Wager, Kay Brauer (2025). How Does the Helping Alliance Relate to Treatment Satisfaction? Dyadic Analyses in Pediatric Pain Patients, Caregivers, and Health Care Professionals. Clin J Pain.

Annika Lisakowski, Johanna Frenkert, Almut Hartenstein-Pinter, Dr. Larissa Kubek, Prof. Dr. Boris Zernikow, PD Dr. Julia Wager (2025). Effective communication in pediatric palliative care: Evaluation of two educational videos. Patient Educ Couns.

Dr. Larissa Kubek, Benedikt Claus, Prof. Dr. Boris Zernikow, PD Dr. Julia Wager (2024). Comparison of actigraphy with a sleep protocol maintained by professional caregivers and questionnaire-based parental judgment in children and adolescents with life-limiting conditions. BMC Palliat Care.

Anne Kitschen, Diana Wahidie, Dorothee Meyer, Lisa-Marie Rau, Ann-Kristin Ruhe, PD Dr. Julia Wager, Prof. Dr. Boris Zernikow, Dirk Sauerland (2024). Cost-of-illness and Economic Evaluation of Interventions in Children and Adolescents With Chronic Pain: A Systematic Review. Clin J Pain.

Dr. Larissa Kubek, Nina Angenendt, Carola Hasan, Prof. Dr. Boris Zernikow, PD Dr. Julia Wager (2023). Relevance of Potential Contributing Factors for the Development and Maintenance of Irritability of Unknown Origin in Pediatric Palliative Care. Children (Basel).

Ariane Sommer, Susanne Grothus, Benedikt Claus, Lorin Stahlschmidt, PD Dr. Julia Wager (2023). Fatigue in Children and Adolescents: A Population-Based Longitudinal Study on Fatigue and Chronic Pain. J Pediatr Psychol.

Dr. Larissa Kubek, Benedikt Claus, Kevin Rostasy, Annikki Bertolini, Mareike Schmimmel, Michael C. Frühwald, Georg Classen, Prof. Dr. Boris Zernikow, PD Dr. Julia Wager (2023). Development and preliminary validation of the Sleep Screening for Children and Adolescents with Complex Chronic Conditions (SCAC). J Sleep Res.

Dr. Larissa Kubek, Patrizia Kutz, Claudia Roll, Prof. Dr. Boris Zernikow, PD Dr. Julia Wager (2022). Applicability of Actigraphy for Assessing Sleep Behaviour in Children with Palliative Care Needs Benchmarked against the Gold Standard Polysomnography. J Clin Med.

PD Dr. Julia Wager, Dr. Larissa Kubek, Maria Brenner, Sara Calmanti, Carmel Doyle, Malin Lövgren, Ulrika Kreicbergs, Leontien Kremer, Philippe Le Moine, Guillaume Robert, Meggi Schuiling-Otten, Peter Schröder-Bäck, Eduard Verhagen, Prof. Dr. Boris Zernikow (2022). Expert survey on coverage and characteristics of pediatric palliative care in Europe - a focus on home care. BMC Palliat Care.

Dr. Larissa Kubek, Nina Angenendt, Carola Hasan, Prof. Dr. Boris Zernikow, PD Dr. Julia Wager (2022). Potential Contributing Factors for Irritability of Unknown Origin in Pediatric Palliative Care. J Pain Symptom Manage.

Sven Kernebeck, Theresa Sophie Busse, Chantal Jux, Dr. Larissa Kubek, Dorothee Meyer, Daniel Zenz, Prof. Dr. Boris Zernikow, Jan Peter Ehlers (2022). Evaluation of an Electronic Medical Record Module for Nursing Documentation in Paediatric Palliative Care: Involvement of Nurses with a Think-Aloud Approach. Int J Environ Res Public Health.

Benedikt Claus, Lorin Stahlschmidt, Emma Dunford, János Major, Cynthia Harbeck-Weber, Rashmi Parekh Bhandari, Ardith Baerveldt, Verena Neß, Kamila Grochowska, Bettina Hübner-Möhler, Prof. Dr. Boris Zernikow, PD Dr. Julia Wager (2022). Intensive interdisciplinary pain treatment for children and adolescents with chronic noncancer pain: a preregistered systematic review and individual patient data meta-analysis. Pain.

Sven Kernebeck, Chantal Jux, Theresa Sophie Busse, Dorothee Meyer, Dr. Larissa Kubek, Daniel Zenz, Prof. Dr. Boris Zernikow, Jan Peter Ehlers (2022). Participatory Design of a Medication Module in an Electronic Medical Record for Paediatric Palliative Care: A Think-Aloud Approach with Nurses and Physicians. Children.

Theresa Sophie Busse, Sven Kernebeck, Dr. Larissa Kubek, Dorothee Meyer, Daniel Zenz, Peter Haas, Prof. Dr. Boris Zernikow, Jan Peter Ehlers (2022). Planning for Implementation Success of an Electronic Cross-Facility Health Record for Pediatric Palliative Care Using the Consolidated Framework for Implementation Research (CFIR). International Journal of Environmental Research and Public Health.

Ariane Sommer, Susanne Grothus, Kamila Grochowska, Benedikt Claus, Lorin Stahlschmidt, PD Dr. Julia Wager (2021). Assessing fatigue in children and adolescents: Psychometric validation of the German version of the PROMIS® Pediatric Short Form v2.0 - Fatigue 10a in school children and pediatric chronic pain patients. Quality of Life Research.

Sophie Pelke, PD Dr. Julia Wager, Benedikt Claus, Kathrin Stening, Prof. Dr. Boris Zernikow, Mandira Reuther (2021). Validation of the FACETS-OF-PPC as an Outcome Measure for Children with Severe Neurological Impairment and Their Families—A Multicenter Prospective Longitudinal Study. Children.

Theresa Sophie Busse, Chantal Jux, Sven Kernebeck, Dr. Larissa Kubek, Dorothee Meyer, Daniel Zenz, Prof. Dr. Boris Zernikow, Jan Peter Ehlers (2021). Participatory Design of an Electronic Cross-Facility Health Record (ECHR) System for Pediatric Palliative Care: A Think-Aloud Study. Children.

PDF Projekt DOI

Lisa-Marie Rau, Susanne Grothus, Ariane Sommer, Kamila Grochowska, Benedikt Claus, Prof. Dr. Boris Zernikow, PD Dr. Julia Wager (2021). Chronic Pain in Schoolchildren and its Association With Psychological Wellbeing Before and During the COVID-19 Pandemic. Journal of Adolescent Health.

Donnamay T. Brown, Benedikt Claus, Anna Könning, PD Dr. Julia Wager (2021). Unified Multifactorial Model of Parental Factors in Community-Based Pediatric Chronic Pain. Journal of Pediatric Psychology.

Sven Kernebeck, Theresa Sophie Busse, Chantal Jux, Dorothee Meyer, Dr. Larissa Kubek, Daniel Zenz, Prof. Dr. Boris Zernikow, Jan Peter Ehlers (2021). Participatory Design of an Electronic Medical Record for Paediatric Palliative Care: A Think-Aloud Study with Nurses and Physicians. Children.

Theresa Sophie Busse, Chantal Jux, Sven Kernebeck, Dr. Larissa Kubek, Dorothee Meyer, Daniel Zenz, Prof. Dr. Boris Zernikow, Jan Peter Ehlers (2021). Needs Assessment for the Development of an Electronic Cross-Facility Health Record (ECHR) for Pediatric Palliative Care: A Design Thinking Approach. Children.

Susanne Grothus, Ann-Kristin Ruhe, Ingo Pfenning, PD Dr. Julia Wager, Prof. Dr. Boris Zernikow (2021). Economic long-term effects of intensive interdisciplinary pain treatment in paediatric patients with severe chronic pain: Analysis of claims data. European Journal of Pain.

Sarah Kisling, Benedikt Claus, Lorin Stahlschmidt, PD Dr. Julia Wager (2021). The efficacy of an educational movie to improve pain and dysfunctional behavior in school children: A randomized controlled trial. European Journal of Pain.

Dorothee Meyer, Sven Kernebeck, Theresa Sophie Busse, Jan Ehlers, PD Dr. Julia Wager, Prof. Dr. Boris Zernikow, Dr. Larissa Kubek (2021). Electronic Health Records in Specialized Pediatric Palliative Care: A Qualitative Needs Assessment among Professionals Experienced and Inexperienced in Electronic Documentation. Children.

Ariane Sommer, Kamila Grochowska, Susanne Grothus, Benedikt Claus, Lorin Stahlschmidt, PD Dr. Julia Wager (2021). The German version of the Revised Adolescent Sleep–Wake Scale (rASWS) – A validation study in pediatric pain patients and school children. Sleep Medicine.

PD Dr. Julia Wager, Ann-Kristin Ruhe, Lorin Stahlschmidt, Kathrin Leitsch, Benedikt Claus, Winfried Häuser, Elmar Brähler, Andreas Dinkel, Rüya Kocalevent, Prof. Dr. Boris Zernikow (2021). Long‐term outcomes of children with severe chronic pain: Comparison of former patients with a community sample. European Journal of Pain.

Sophie Pelke, PD Dr. Julia Wager, Benedikt Claus, Prof. Dr. Boris Zernikow, Mandira Reuther (2020). Development and psychometric validation of the family-centered multidimensional outcome measure for pediatric palliative care targeted to children with severe neurological impairmentis—A multicenter prospective study. Palliative Medicine.