Electronic Health Records in Specialized Pediatric Palliative Care: A Qualitative Needs Assessment among Professionals Experienced and Inexperienced in Electronic Documentation

Zusammenfassung

Background: Currently, to the best of our knowledge, no findings exist concerning the needs of professionals in specialized pediatric palliative care (PPC) regarding electronic health records (EHRs). Several studies have highlighted benefits concerning the use of EHRs in pediatrics. However, usability is strongly affected by the degree of adaptivity to the context of application. The aim of this study is to examine the needs of professionals concerning an EHR in the specialized PPC inpatient and outpatient settings. Methods: A qualitative research design was chosen to address the complex aspects of user demands. Focus group interviews and semi-structured one-on-one interviews were conducted with PPC professionals. N = 23 participants from inpatient and N = 11 participants from outpatient settings of specialized PPC representing various professions took part in the study. Results: The findings could be grouped into four categories: (1) attitude towards the current methods of documentation, (2) attitude towards electronic documentation in general, (3) general requirements for an EHR, and (4) content requirements for an EHR. Conclusions: Professionals in specialized PPC expect and experience many benefits of using electronic documentation. Their requirements for an EHR for inpatient and outpatient settings of PPC are largely consistent with EHRs for pediatrics. However, individual specifications and adaptations are necessary for this particular setting.

Publikation
Children
Dorothee Meyer
Dorothee Meyer
Erziehungswissenschaftlerin
Theresa Sophie Busse
Gesundheitswissenschaftlerin

Theresa interessiert sich vor allem für die Entwicklung und den Einsatz digitaler Anwendungen in der Palliative Care sowie damit verbundene ethische Fragestellungen.

Dr. Julia Wager
Dr. Julia Wager
Wissenschaftliche Leitung

Julia interessiert sich vor allem für die Entwicklung diagnostischer Instrumente und der Interventionsforschung für Kinder mit chronischen Schmerzen.

Prof. Dr. Boris Zernikow
Prof. Dr. Boris Zernikow
Medizinische Leitung
Larissa Dreier
Larissa Dreier
Psychologin