Palliative Care

Introducing the Descriptive Framework for Assessing Epidemiological Cross-National Transferability: Application to Extrapolating Pediatric Life-Limiting Condition Prevalence Between Two European Countries

Background: The transfer of epidemiological parameters, such as prevalence, between nations with limited data is a common but …

DOI
Effective communication in pediatric palliative care: Evaluation of two educational videos

Objectives: In pediatric palliative care, effective communication is one of the most important skills. However, physicians often lack …

Projekt DOI
Comparison of actigraphy with a sleep protocol maintained by professional caregivers and questionnaire-based parental judgment in children and adolescents with life-limiting conditions

Background: Actigraphy offers a promising way to objectively assess pediatric sleep. Aim of the study was investigating the extent to …

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Relevance of Potential Contributing Factors for the Development and Maintenance of Irritability of Unknown Origin in Pediatric Palliative Care
Potential contributing factors (PCFs) for irritability of an unknown origin (IUO) in children with neurological conditions are …
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Development and preliminary validation of the Sleep Screening for Children and Adolescents with Complex Chronic Conditions (SCAC)
Children and adolescents with complex chronic conditions, including those with life-threatening or life-limiting conditions, are a …
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Applicability of Actigraphy for Assessing Sleep Behaviour in Children with Palliative Care Needs Benchmarked against the Gold Standard Polysomnography
In children with life-limiting conditions and severe neurological impairment receiving pediatric palliative care (PPC), the degree to …
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Expert survey on coverage and characteristics of pediatric palliative care in Europe - a focus on home care

Background: For children with life-limiting conditions home care is a key component of pediatric palliative care. However, poor …

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Potential Contributing Factors for Irritability of Unknown Origin in Pediatric Palliative Care

Context: In pediatric palliative care, irritability of unknown origin (IUO) in children with severe neurological impairment is a …

DOI
Evaluation of an Electronic Medical Record Module for Nursing Documentation in Paediatric Palliative Care: Involvement of Nurses with a Think-Aloud Approach

Background: Paediatric palliative care (PPC) is a noncurative approach to the care of children and adolescents with life-limiting and …

DOI
Planning for Implementation Success of an Electronic Cross-Facility Health Record for Pediatric Palliative Care Using the Consolidated Framework for Implementation Research (CFIR)
Pediatric palliative care (PPC) patients require years of care across professions and sectors. Sharing treatment-related information …
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