Palliative Medicine

Introducing the Descriptive Framework for Assessing Epidemiological Cross-National Transferability: Application to Extrapolating Pediatric Life-Limiting Condition Prevalence Between Two European Countries

Background: The transfer of epidemiological parameters, such as prevalence, between nations with limited data is a common but …

DOI
Comparison of actigraphy with a sleep protocol maintained by professional caregivers and questionnaire-based parental judgment in children and adolescents with life-limiting conditions

Background: Actigraphy offers a promising way to objectively assess pediatric sleep. Aim of the study was investigating the extent to …

DOI
Planning for Implementation Success of an Electronic Cross-Facility Health Record for Pediatric Palliative Care Using the Consolidated Framework for Implementation Research (CFIR)
Pediatric palliative care (PPC) patients require years of care across professions and sectors. Sharing treatment-related information …
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Needs Assessment for the Development of an Electronic Cross-Facility Health Record (ECHR) for Pediatric Palliative Care: A Design Thinking Approach

Background: Pediatric palliative care (PPC) is characterized by years of multisectoral and multi-professional care. Sharing information …

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